Behind the Mask of Moebius Syndrome
A Memoir
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About the Book
Moebius syndrome is a rare congenital neurological disorder affecting two to 20 out of every million newborns. Patients suffer from total facial paralysis and often cannot even close their eyes or move them from side to side. Unable to smile, frown or otherwise express emotion, their everyday personal relationships are deeply affected. Even eating (chewing) is a problem.
This memoir of a woman with Moebius syndrome provides a first-person view of life “behind the mask.”
About the Author(s)
Bibliographic Details
by Cristina Faragli
foreword by Ronald M. Zuker, M.D.
Format: softcover (6×9)
Pages: 208
Bibliographic Info: 27 photos, index
Copyright Date: 2016
pISBN: 978-0-7864-9838-3
eISBN: 978-1-4766-2295-8
Imprint: McFarland
Table of Contents
Acknowledgments viii
Foreword by Ronald Zuker, M.D. 1
Preface 2
One. In the Cocoon 5
Two. Learning to Fly 73
Three. Like a Butterfly 140
Index 195
