Behind the Mask of Moebius Syndrome
Available for pre-order / backorder
About the Book
Moebius syndrome is a rare congenital neurological disorder affecting two to 20 out of every million newborns. Patients suffer from total facial paralysis and often cannot even close their eyes or move them from side to side. Unable to smile, frown or otherwise express emotion, their everyday personal relationships are deeply affected. Even eating (chewing) is a problem.
This memoir of a woman with Moebius syndrome provides a first-person view of life “behind the mask.”
About the Author(s)
by Cristina Faragli
foreword by Ronald M. Zuker, M.D.
Format: softcover (6×9)
Bibliographic Info: 27 photos, index
Copyright Date: 2016
Table of Contents
Foreword by Ronald Zuker, M.D. 1
One. In the Cocoon 5
Two. Learning to Fly 73
Three. Like a Butterfly 140